Studies Underway at TVCC

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• Canadian Neuromuscular Disease Registry
  Jan. 2010-Dec. 2019
• Myoblast transplantation in Duchenne and Becker muscular dystrophy patient
  May 2010-Nov. 2019
• Childhood Hemiplegic Cerebral Palsy Integrated Neuroscience Discovery Network  CP-NET-Hemi-Phase 1
  Jan. 2012-Feb. 2019
• Childhood Hemiplegic Cerebral Palsy Integrated Neuroscience Discovery Network  CP-NET-Clinical Database Platforms-Phase 2
  Jan. 2014-June 2019
• Health endpoints and longitudinal progression in congenital myotonic dystrophy (HELP-CDM)
  Mar. 2014-June 2019
• Capturing the experience of sports-related concussions
  Mar. 2014-Nov. 2019
• Stacking exercises aid the decline in forced vital capacity (FVC) and sick time (STEADFAST) in boys 6-16 years with Duchenne muscular dystrophy
  Apr. 2014-Apr. 2019
• A phase 2 randomized, double-blind, placebo-controlled, multiple ascending dose study to evaluate the safety, efficacy, pharmacokinetics and pharmacodynamics of PF-06252616 in ambulatory boys with Duchenne muscular dystrophy
  Dec. 2014-Feb. 2019
• A phase 3, randomized, double blind, sham-procedure controlled study to assess the clinical efficacy and safety of ISIS 396443 administered intrathecally in patients with later-onset spinal muscular atrophy
  Dec. 2014-Jul 2019
• Optimizing life success through residential immersive life skills programs for youth with disabilities
  Mar. 2015-Jan. 2019
• Children’s outdoor play experiences: Why they play and how they benefit
  Jan. 2016 – June 2019
• Managing persistent concussion symptoms in children and youth: A multidisciplinary approach to a multifaceted problem-revisiting a chart review
  Feb. 2016-Oct. 2019
• A phase 1b/2 randomized, double-blind, placebo-controlled study of ACE-083 in patients with facioscapulohumeral muscular dystrophy (FSHD)
  Dec. 2016-Apr.2019
• A two-part seamless, multi-center randomized, placebo-controlled, double-blind study to investigate the safety, tolerability, pharmacokinetics, pharmacodynamics and efficacy of Ro7034067 in type2 and 3 spinal muscular atrophy patients
  Dec. 2016-May 2019

• Trial readiness and endpoints assessment in congenital myotonic dystrophy
  Dec. 2016-Sept. 2019
• A double-blind, placebo-controlled, multicenter study with an open-label extension to evaluate the efficacy and safety of SRP-4045 and SRP-4053 in patients with Duchenne muscular dystrophy
  Dec. 2016-Jan. 2019
• A randomized, double blind, placebo-controlled study to assess the efficacy, safety, and tolerability of BMS-986089 in ambulatory boys with duchenne muscular dystrophy
  Apr. 2017-Sept. 2019
• Engagement in the pediatric rehabilitation intervention process: Its nature, measurement, and role in the determination of outcomes
  Oct. 2017-July 2019
• Children and teens in charge of their health: A feasibility study of solution-focused coaching to foster healthy lifestyles in children and young people with physical disabilities
  Dec. 2017-Mar. 2019
• Constructing and validating the interRAI 0-3 for the developmental and mental health needs of children and families
  Dec. 2017-Sept. 2019
• A randomized, double-blind study to evaluate the efficacy and safety to Tideglusib versus placebo for the treatment of children and adolescents with congenital myotonic dystrophy (AMO study) Feb. 2018-Mar. 2020
• The facilitators and barriers of physical activity engagement for youth and young adults with childhood onset physical disabilities
  Feb. 2018-Mar. 2019
• Determining the natural course of fatigue in children and adolescents with cerebral palsy
  June 2018-Mar. 2019
• Health concerns of adolescents and adults with childhood onset physical disability
  June 2018-Mar. 2019
• Increasing our knowledge of social and motor skills in children with Autism Spectrum Disorder to help better understand participation in social activities 
  Oct. 2018-May 2020
• A multicentre, open-label extension study of WVE-210201 in patients previously enrolled in WVEDMDX51-001
  Oct. 2018-Jan.2020
• An open-label extension study for patients with Duchenne Muscular Dystrophy who participated in studies of SRP-5051
  Oct. 2018-Jan.2020
• A randomized, double-blind, placebo-controlled, global phase 3 study of Edasalonexent in pediatric patients with Duchenne Muscular Dystrophy
  Feb. 2019-Mar. 2020