Children with Spina Bifida, a parents' guide
2nd edition
edited by Marlene Lutkenhoff

 

Christal, coping with spina bifida
author Karen Snyder Travis

Cody's Story: Living one day at a time with Spina Bifida / Janny J. Dicken
December 11, 1984, we welcomed a new life into the world when Cody, our bundle of love, was born. But the smiles quickly turned to tears when we received the shocking news of his birth defect: spina bifida. Our struggle against this disease had begun. There were times when the odds were against Cody. Many times we feared he would not live. But it seemed that Cody inherited strength from his grandfathers, who were both remarkable men. This is why we followed the important advice given to us by a very special lady, who told us to "Live one day at a time".

Encouraging Social Development of the Young Person Living with Spina Bifida / Spina Bifida Association
This booklet is about social development, how Spina Bifida may influence development and learning social skills, and some ideas about how parents and others can help young people develop socially throughout their childhood and adolescence.

 

Folic Acid essential for prenatal health
author Allan Spreen
provides valuable information on the many health benefits of folic acid, its safe use, and how to include it in your diet

Living with Spina Bifida, a guide for families and professionals / Adrian Sandler
Pediatrician Sandler has written a valuable handbook that addresses patients' biopsychosocial and developmental needs from birth through adolescence and into adulthood. Sandler's holistic approach encourages families to focus more on the child and less on the disability while providing abundant information about this condition. Parents of children with spina bifida add their personal insights in several chapters. Included are a glossary, a list of spina bifida associations, and suggested readings.

Health Guide for Adults Living with Spina Bifida / Spina Bifida Association
This workbook addresses the health topics and issues that adults told us to cover. The goal is to help you manage your health, prevent complications of spina bifida and maximize your health.

 

Pressure Sores, a 3-in-1 medical reference
medical dictionary, bibliography & annotated research guide
editors James N.Parker and Philip M.Parker

Spina Bifida, a 3-in-1 medical reference / James N. Parker and Philip M.Parker 2004
In addition to offering a structured and comprehensive bibliography, the pages will tell you where and how to find reliable information covering virtually all topics related to spina bifida, from the essentials to the most advanced areas of research.

Tethered Spinal Cord Syndrome a revised and updated directory for the internet age
editors James N.Parker and Philip M.Parker