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Muscular Dystrophy  E-mail
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The Book of Kehls 
Christine Kehl O'Hagan describes with humor and grace the ways in which muscular dystrophy shaped the life of her family

The Boy or, Waiting for the Electrician's Daughter / John Terpstra
The story of his wife's family and the short lives of her three brothers, each of whom lived with muscular dystrophy until their early twenties.

  

Journey of Love, a Parent's Guide to Duchenne Muscular Dystrophy / Muscular Dystrophy Association
Provides a comprehensive, accurate and readable compendium on Duchenne muscular dystrophy.

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A Life Worth Living, abilities, interests and travels of a young disabled man.(Duchenne Muscular Dystrophy)
written by Jonathan Colchester

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Moonrise, one family, genetic identity, and muscular dystrophy
author: Penny Wolfson
A personal memoir exploring special education, giftedness, prenatal testing, and the genes she shares with her mother, sisters, and son.

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Muscular Dystrophy, Genetic and Developmental Diseases and Disorders
author: Paula Johanson
Topics covered include research, genes, living with MD, and testing for MD

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Muscular Dystrophy
author: Melissa Abramovitz

Myotonic Dystrophy, the facts / Peter Harper
Carries the message that there is hope, that something can be done, even if there is, as yet, no actual cure. Anyone affected by this disorder will find this book a great source of hope and strength.

Muscular Dystrophy and Other Neuromuscular Diseases, psychosocial issues / Leon I. Charash, Robert E. Lovelance et al 1991
This text reports on the findings of professionals who, over the years, have developed strategies for maintaining the psychosocial well-being of youngsters and adults with chronic, progressive neuromuscular disorders, as well as that of family members.

Muscular Dystrophy in Children a guide for families/ Irwin M.Siegel, M.D.
If you are reading this book, you probably have or are related to a child with muscular dystrophy, or know of a family faced with this serious medical problem. This guide offers information and practical advice on the disease and its management.

Muscular Dystrophy the facts / Alan E.H.Emery
This book is about living with muscular dystrophy and coping with its physical and psychological effects.

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Precious Time
Stefan is a delightful nine-year-old boy who has muscular dystrophy.

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Raising a Child with a Neuromuscular Disorder, a guide for parents, grandparents, friends, & Professionals
author: Charlotte E. Thompson

Last Updated ( Friday, 30 September 2011 )